Idiopathic Small Fiber Peripheral Neuropathy

It’s been over 20 years since I first had a chat with a doctor about my toes being numb and what could be done. He said he could run some tests to determine if I had damaged nerves and when I asked him the magic question – if it is nerve damage what can be done? His answer – nada, nothing, zip. So of course I said then why have the test. Well the numbness in the toes went to the bottom of the feet, then the ankles, then the calves to just below the knees in both legs.
I started searching for something that would help in March of last year. I pressed the doctor for an appointment with a neurologist, had MRIs and an EMG, meet with the neurologist who diagnosed it as Idiopathic Small Fiber Peripheral Neuropathy and it was probably hereditary. He also told me there are no topicals or creams that do anything for numbness. Since I only have the numbness with my neuropathy I left that meeting totally depressed.
I kept searching for something that would help and in August of last year I found this group and jumped into the full protocol in September. I didn’t ramp up the on the R-ALA because I was already taking the crappy ALA at a fairly high dose because I had heard it helps along the way.
By December of last year the numbness started getting less. It was no longer just under my knees, it was now just above the ankles and I am excited because #theprotocolworks.
I haven’t made any additional progress with the numbness. It is still just above the ankles but it’s stopped progressing which is a major win for me. So if it’s my new normal so be it. I can live with that. I am still taking the full protocol and will continue because it has so many more benefits – lowering my blood pressure for one.
God Speed on your journey to getting your life back and being pain
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